For this study of intractable pain after spinal
cord injury (SCI), a questionnaire was developed, pilot-tested and mailed to
356 previously hospitalized spinal cord injury patients, 200 (56%) of whom
returned the completed questionnaire. Of the respondents, 160 (80%) reported
abnormal sensation and 96 (48%) called the discomfort painful. Abnormal
sensations were first noted within 6 months of injury by 105 patients, from 7
months to 4 years after injury by 39, and longer than 4 years after injury or
unknown by 16. Pain locations varied and were unrelated to the level of lesion.
In 30% of those reporting abnormal sensation the location of pain remained
stationary, whereas in 17% spinal cord injury patients it changed over time. The
intensity of pain was described as severe to extreme by 25%; 44% spinal cord
injury patient indicated that it interfered with daily activities. Increase of
pain over time was noted by 41% spinal cord injury. Activity, inactivity,
weather change and overexertion were not frequently identified as aggravating
circumstances. Rest and medication were cited as alleviating factors.
Approximately 38% of those spinal cord injury patients experiencing pain used
medications but only 22% spinal cord injury patients obtained consistent relief
from their use. The spinal cord injury patients with low level
lesions were more willing to exchange a hypothetical chance of recovery and/or
loss of reacquired physiologic functions for pain relief than were spinal cord
injury patients with higher lesions.
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